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Published on: September 27, 2017
Effects of atopic dermatitis on young American children and their families
Sarah L Chamlin1, Ilona J Frieden, Mary L Williams
1Division of Pediatric Dermatology, Children's Memorial Hospital, Chicago, Illinois, USA. schamlin@childrensmemorial.org
Insights
Atopic dermatitis significantly impacts the quality of life for young children and their families. This study developed a framework detailing these effects on physical and emotional health, and social functioning.
Area of Science:
- Pediatric Dermatology
- Quality of Life Research
- Child Psychology
Background:
- Atopic dermatitis (AD) presents complex psychologic, physical, and social challenges.
- The impact of AD on the quality of life (QOL) for very young American children and their families is not well understood.
Purpose of the Study:
- To document the effects of atopic dermatitis on young children and their families.
- To develop a comprehensive conceptual framework of these QOL impacts.
Main Methods:
- Directed focus sessions were conducted with parents of 26 children with AD and 6 expert clinicians.
- Quality-of-life effects were identified, rank-ordered, and categorized to develop a conceptual framework.
Main Results:
- A total of 181 specific quality-of-life effects were identified by parents and experts.
- The conceptual framework encompasses domains of physical health, emotional health, physical functioning, and social functioning, affecting both children and parents.
Conclusions:
- Atopic dermatitis significantly affects the quality of life for children and their families.
- A comprehensive conceptual framework was developed to summarize these effects in young American children.
- This framework can serve as a basis for developing new quality-of-life assessment instruments.
Objective:
The psychologic, physical, and social impact of atopic dermatitis is complex and varies among children of different ages, and the effects of atopic dermatitis on the quality of life of very young American children and their families are not well understood. This study was conducted to document these effects of atopic dermatitis on young children and their families.
Methods:
Directed focus sessions were performed with parents of 26 young children with atopic dermatitis and 6 expert clinicians. Specific mentions of the ways in which atopic dermatitis affected the children and parents were reviewed, rank ordered, and categorized according to similarity in content. The categories were examined to determine the domains represented, and the domains were used to compose a conceptual framework of all of the ways that atopic dermatitis affects children and their families.
Results:
Parents and experts mentioned a total of 181 specific quality-of-life effects. A conceptual framework, developed from the 181 effects, contains the domains of physical health, emotional health, physical functioning, and social functioning; each domain includes effects on both the child and the parents.
Conclusions:
Atopic dermatitis greatly affects the quality of life of afflicted children and their families. The comprehensive conceptual framework summarizes the ways in which atopic dermatitis affects the quality of life in young American children. This conceptual framework forms the basis from which quality-of-life instruments can be developed.
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