Effects of atopic dermatitis on young American children and their families

Sarah L Chamlin1, Ilona J Frieden, Mary L Williams

  • 1Division of Pediatric Dermatology, Children's Memorial Hospital, Chicago, Illinois, USA. schamlin@childrensmemorial.org

Pediatrics
|September 3, 2004
PubMed

Insights

Atopic dermatitis significantly impacts the quality of life for young children and their families. This study developed a framework detailing these effects on physical and emotional health, and social functioning.

Area of Science:

  • Pediatric Dermatology
  • Quality of Life Research
  • Child Psychology

Background:

  • Atopic dermatitis (AD) presents complex psychologic, physical, and social challenges.
  • The impact of AD on the quality of life (QOL) for very young American children and their families is not well understood.

Purpose of the Study:

  • To document the effects of atopic dermatitis on young children and their families.
  • To develop a comprehensive conceptual framework of these QOL impacts.

Main Methods:

  • Directed focus sessions were conducted with parents of 26 children with AD and 6 expert clinicians.
  • Quality-of-life effects were identified, rank-ordered, and categorized to develop a conceptual framework.

Main Results:

  • A total of 181 specific quality-of-life effects were identified by parents and experts.
  • The conceptual framework encompasses domains of physical health, emotional health, physical functioning, and social functioning, affecting both children and parents.

Conclusions:

  • Atopic dermatitis significantly affects the quality of life for children and their families.
  • A comprehensive conceptual framework was developed to summarize these effects in young American children.
  • This framework can serve as a basis for developing new quality-of-life assessment instruments.
Abstract

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