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Parents experiences of their child's care during hospitalization
1School of Nursing, University of Colorado Health Sciences Center, Denver, Colorado, USA.
Insights
Parents navigating their child's hospitalization perceive care quality through four key processes: understanding, boundaries, uncertainty, and reassurance. The parent-caregiver relationship is crucial for coping and meeting needs.
Area of Science:
- Pediatric Healthcare Quality
- Patient Experience Research
- Qualitative Health Research
Background:
- Healthcare quality metrics for children are less developed than for adults.
- The role of parent-caregiver interactions in pediatric care quality is understudied.
- Understanding parental perspectives is vital for improving hospitalized children's care.
Purpose of the Study:
- To explore parents' experiences of care quality for their hospitalized children.
- To identify how parents perceive and evaluate the care their children receive.
- To understand the parent-caregiver relationship in the context of pediatric hospitalization.
Main Methods:
- Qualitative descriptive study informed by grounded theory.
- Convenience sample of six parent participants.
- Exploration of parents' lived experiences with hospitalized children.
Main Results:
- Parents experience hospitalized childcare through four interconnected processes: facing boundaries, attempting to understand, coping with uncertainty, and seeking reassurance.
- The parent-caregiver relationship is central to parents' coping mechanisms.
- The parent-caregiver relationship influences parents' perceptions of their and their child's needs being met.
Conclusions:
- The parent-caregiver relationship significantly impacts the perceived quality of care for hospitalized children.
- Addressing parental needs within the caregiving dynamic is essential for quality improvement.
- Further research is needed to validate and expand upon these findings in pediatric settings.
Abstract:
Driven by the institutionalization of healthcare, and the attendant financial and regulatory issues, health caregivers now need to objectively define and assess the quality of care that is delivered to patients. Measures of quality care for children lag behind the measures that are utilized for adults. To date, little is understood about how quality care for children is identified and measured. Pediatric literature acknowledges, but has poorly studied, the relationship between health care providers and parents in providing and evaluating quality care for children. This paper applies qualitative descriptive theory that is informed by grounded theory to explore parents' experiences of the care they received for their hospitalized children. From a convenience sample of six parent participants, this study finds that parents experience childcare in a hospitalized setting in terms of four interconnecting, circular processes: (a) facing boundaries, (b) attempting to understand, (c) coping with uncertainty and (d) seeking reassurance from caregivers. The experiences shared by the parent participants in this study convey new meaning to the interactional nature of the parent-caregiver relationship. In particular, the researcher finds that parents use the parent-caregiver relationship to help cope with their child's condition, and this in turn influences the parents' sense that their and their child's needs are being met.
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