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Stroke and eating difficulties: long-term experiences.

Eva Carlsson1, Anna Ehrenberg, Margareta Ehnfors

  • 1Doctoral Student, Department of Caring Sciences, Orebro University, Orebro, Sweden. eva.carlsson@ivo.oru.se

Journal of Clinical Nursing
|September 14, 2004
PubMed
Summary

Stroke survivors experience significant challenges with eating difficulties, often feeling abandoned and dependent. Improved nursing support and evidence-based guidelines are crucial for managing these long-term eating challenges.

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Area of Science:

  • Neurology
  • Rehabilitation Medicine
  • Qualitative Research

Background:

  • Eating difficulties are common post-stroke, often linked to communication issues.
  • Previous research focused on professional perspectives, neglecting patient experiences.
  • Limited understanding exists regarding the lived experience of post-stroke eating challenges.

Purpose of the Study:

  • To explore the prolonged experiences of individuals living with eating difficulties after a stroke.
  • To gain insight into the subjective realities of post-stroke dysphagia.

Main Methods:

  • Explorative qualitative case study design.
  • In-depth analysis through repeated interviews and participant observations.
  • Study involved three participants 1.5-2 years post-stroke.

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Main Results:

  • Participants described striving for normalcy amidst eating difficulties.
  • Key themes included feeling abandoned to self-manage, experiencing losses, and dependence.
  • The adjustment process was long, arduous, and marked by functional and activity-related losses.

Conclusions:

  • Living with post-stroke eating difficulties is a complex, isolating experience.
  • Participants reported a lack of nursing support, leading to feelings of abandonment.
  • There is a critical need for evidence-based nursing guidelines for eating training throughout care.