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Ethics in Research

Ethics in Research

Today, scientists agree that good research is ethical in nature and is guided by a basic respect for human dignity and safety. However, this has not always been the case. Modern researchers must demonstrate that the research they perform is ethically sound.

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Informed consent in the NICU setting: an ethically optimal model for research solicitation.

Lisa Golec¹, Sharyn Gibbins, Michael S Dunn

¹Sunnybrook and Women's College Health Sciences Centre, 76 Grenville Street, Toronto, Ontario M5S 1B2, Canada.

Journal of Perinatology : Official Journal of the California Perinatal Association

|September 17, 2004

Summary

Recruiting infants for Neonatal Intensive Care Unit (NICU) research requires ethical considerations. A proposed model enhances parental autonomy and informed consent during the recruitment process.

Keywords:

Biomedical and Behavioral Research

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Area of Science:

Medical research ethics
Neonatal intensive care

Background:

Patient recruitment in Neonatal Intensive Care Units (NICUs) presents unique challenges.
Existing recruitment models are debated for their effectiveness and ethical implications.

Purpose of the Study:

To discuss current and proposed patient recruitment models for the NICU setting.
To present a systematic approach to the consent process prioritizing parental autonomy.

Main Methods:

The proposed model emphasizes informing parents of research and rights before solicitation.
It includes asking for permission to approach, one study at a time, relevance to infant status, minimizing information overload, allowing adequate decision time, and implementing waiting periods.

Main Results:

The systematic approach aims to protect and promote parental autonomy in research decisions.
This model is designed to facilitate a more informed choice for parents regarding their infant's participation in research.

Conclusions:

The proposed recruitment and consent model offers an ethically optimal approach for neonate inclusion in research.
Following this model may improve parental ability to make truly informed choices.