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Published on: December 20, 2024
Decisions Hispanic families make after the identification of deafness
Annie Steinberg1, Lisa Bain, Yuelin Li
1Children's Sea-shore House at The Children's Hospital of Philadelphia, 3405 Civic Center Blvd., Philadelphia, PA 19104-4388. drannie@mail.med.upenn.edu
Abstract:
This study examines the decision-making process for Hispanic families living in the United States who have a child with a hearing loss. Twenty-nine families in four geographical areas shared their experiences in searching for appropriate interventions and making choices regarding communication and education. We explored the impact of language, culture, minority status, and access to information and services on the decision-making process. The results indicate that the deliberations of Hispanic parents are often complicated by language and cultural barriers and by limited access to information, resources, and a full range of options. The communication method chosen tended to be the one recommended by professionals, usually a combination of spoken English and sign language. Parents frequently expressed the hope that their child would learn Spanish as well. These subjects displayed a higher degree of assertiveness in obtaining services for their children than other studies have suggested.
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