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Receiving a hepatitis C-positive diagnosis.

M Hopwood¹, C Treloar

¹National Centre in HIV Social Research, The University of New South Wales, Sydney, New South Wales, Australia. m.hopwood@unsw.edu.au

Internal Medicine Journal

|October 16, 2004

Summary

Many patients diagnosed with hepatitis C infection received no explanation from their doctors. Information dissemination improved in the late 1990s, but further efforts are needed for newly diagnosed individuals.

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Area of Science:

Hepatology
Public Health
Patient Experience Research

Background:

Limited academic literature exists on patient experiences following a hepatitis C diagnosis.
Understanding patient perspectives on doctor explanations and support referrals is crucial.

Purpose of the Study:

To investigate patient experiences of receiving a hepatitis C diagnosis.
To analyze the quality of information and support provided by doctors at diagnosis.

Main Methods:

A cross-sectional study involving 504 individuals with hepatitis C infection in New South Wales, Australia.
Data collected on patient-reported explanations, counseling, and information received at diagnosis.

Main Results:

Nearly one-third of participants diagnosed between 1989-2001 received no explanation from their doctor.

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Women and those diagnosed earlier were more likely to report no explanation or post-test counseling.

Improved information dissemination (pamphlets, treatment info) observed for diagnoses from 1997-2001.

Conclusions:

Evidence suggests an increase in hepatitis C information provided by doctors in the late 1990s.
Ongoing efforts are necessary to enhance doctor-provided information and specialist referrals for new hepatitis C diagnoses.