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Involving South Asian patients in clinical trials.
M Hussain-Gambles1, B Leese, K Atkin
1Centre for Research in Primary Care, University of Leeds, UK.
Health Technology Assessment (Winchester, England)
|October 19, 2004
Summary
South Asian patients have varied motivations and deterrents for clinical trial participation, with factors like language and trust being key. Effective recruitment strategies require cultural sensitivity and tailored approaches to overcome barriers.
Area of Science:
- Clinical Trials
- Health Services Research
- Sociology of Health
Background:
- Understanding South Asian patient perspectives on clinical trials is crucial for equitable participation.
- Communication, risk perception, and attitudes toward authority significantly influence trial decisions.
- Investigating heterogeneity within the 'South Asian' population is essential for targeted recruitment.
Purpose of the Study:
- To explore South Asian patients' conceptualization of clinical trials.
- To identify factors influencing trial participation among South Asian subgroups.
- To understand healthcare professionals' views on recruiting South Asian patients.
Main Methods:
- Literature review on minority ethnic participation in clinical trials.
- Qualitative interview studies with South Asian lay people and trial participants.
- Interviews with healthcare professionals regarding recruitment strategies.
Main Results:
- Motivations include altruism and personal health benefits; deterrents involve side-effects, language, and mistrust.
- Younger, English-fluent family members often make participation decisions.
- Social class and age are more significant than ethnicity in influencing trust and participation; service delivery issues are prominent.
Conclusions:
- Effective recruitment necessitates multi-pronged strategies, community consultation, and culturally sensitive approaches.
- Widening eligibility criteria and training health professionals in culturally competent care are vital.
- Future research should address methodological barriers and develop culturally sensitive recruitment methods.