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The PING personally controlled electronic medical record system: technical architecture
William W Simons1, Kenneth D Mandl, Isaac S Kohane
1Children's Hospital Informatics Program, Enders 1, 300 Longwood Avenue, Boston, MA 02115, USA. william.simons@childrens.harvard.edu
Journal of the American Medical Informatics Association : JAMIA
|October 20, 2004
Summary
A new system, PING, offers a lifelong, personally controlled health record. It addresses privacy and access issues, enabling better healthcare delivery and research.
Area of Science:
- Health Informatics
- Medical Record Systems
- Data Privacy
Background:
- Standardized clinical data models and interapplication protocols have advanced.
- Lifelong healthcare records face challenges due to interinstitutional competition, privacy concerns, and lack of nationwide access authentication.
- Existing systems struggle to provide a unified, lifelong health record.
Purpose of the Study:
- To describe the architecture of a personally controlled health care record system.
- To present a solution that overcomes barriers to lifelong health records.
- To meet policy requirements for healthcare delivery and population-wide research.
Main Methods:
- Design and architecture of the PING system.
- Focus on a free and open-source, institutionally unbound system.
- Adherence to previously identified policy requirements for health data.
Main Results:
- The PING system architecture is detailed.
- PING is designed to be institutionally unbound.
- The system is free and open-source, addressing privacy and access concerns.
Conclusions:
- The PING system offers a viable solution for lifelong, personally controlled health records.
- It addresses key policy requirements for healthcare delivery and research.
- This approach can facilitate better health data management and utilization.