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Parent-child interaction: a comparison of parents' perceptions in three groups
J Wilder1, C Axelsson, M Granlund
1Department of Social Sciences, Mälardalen University, 721-23 Västerås, Sweden.
Disability and Rehabilitation
|October 30, 2004
Summary
Parental perceptions of interaction with children with profound multiple disabilities are linked to impairments, not communication skills. Focusing interventions on participation and interaction is key for effective support.
Area of Science:
- Pediatric Rehabilitation
- Child Development
- Disability Studies
Background:
- The International Classification of Functioning, Disability and Health (ICF) provides a framework for understanding health and disability.
- A children's version of the ICF is needed to account for developmental stages and dependency on caregivers.
- Understanding parent-child interaction is crucial for supporting children with disabilities.
Purpose of the Study:
- To evaluate a children's version of the ICF, considering developmental aspects and parental roles.
- To explore parental perceptions of child participation and interaction.
- To investigate how body impairments and activity limitations influence parent-child interactions.
Main Methods:
- A questionnaire-based study involving 91 parents of children with disabilities.
- Comparison of three groups: profound multiple disabilities, developmentally matched, and chronologically matched.
- Analysis of perceived immediate parent-child interaction and desired ideal interaction.
Main Results:
- Children with profound multiple disabilities showed difficulties expressing complex emotions but similar emotional expression overall.
- Parental perceptions of child behavior styles were consistent across groups.
- Parents of children with profound multiple disabilities reported greater difficulties in joint attention and attention directing during interaction.
Conclusions:
- Parental perceptions of immediate interaction are partially related to children's body impairments, but less so to communication skills or activity limitations.
- Communication interventions should prioritize participation and interaction.
- Assessment tools and parental questioning should directly address interaction and participation dynamics.