Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Consent, commodification and benefit-sharing in genetic research.

Donna Dickenson

    Developing World Bioethics
    |November 2, 2004
    PubMed
    Summary

    The biotechnology industry

    Related Concept Videos

    You might also read

    Related Articles

    Articles linked to this work by shared authors, journal, and citation graph.

    Sort by
    Same author

    Surrogacy: New Challenges to Law and Ethics.

    The New bioethics : a multidisciplinary journal of biotechnology and the body·2020
    Same author

    Geneva Statement on Heritable Human Genome Editing: The Need for Course Correction.

    Trends in biotechnology·2020
    Same author

    Overvaluing individual consent ignores risks to tribal participants.

    Nature reviews. Genetics·2019
    Same author

    Should UK primary care be an early adopter of genomic medicine?

    The British journal of general practice : the journal of the Royal College of General Practitioners·2019
    Same author

    Did a permissive scientific culture encourage the 'CRISPR babies' experiment?

    Nature biotechnology·2019
    Same author

    Introduction to the article collection 'Translation in healthcare: ethical, legal, and social implications'.

    BMC medical ethics·2016

    Area of Science:

    • Biotechnology Law and Ethics
    • Bioethics
    • Intellectual Property Law

    Background:

    • The biotechnology industry is a rapidly growing global market, estimated at $17 billion in 2000.
    • The legal framework governing biotechnology, particularly concerning human tissue and genetic material, is underdeveloped.
    • Existing laws and landmark cases (e.g., Moore, Chakrabarty) offer limited control over economic interests in biotechnology.

    Purpose of the Study:

    • To examine the ethical and legal challenges in the biotechnology industry, focusing on the commodification of human biological materials.
    • To analyze the adequacy of current legal and consent-based approaches in protecting vulnerable populations.
    • To explore the concept of injustice in the context of human tissue and genome commercialization.

    Main Methods:

    • Review of existing medical and patent law.
    • Analysis of legal cases such as Moore and Chakrabarty.
    • Examination of developments in consent procedures and intellectual property consultations.
    • Consideration of perspectives from vulnerable genetic communities.

    Main Results:

    • The biotechnology sector faces significant ethical and legal gaps, akin to a 'gold rush' with potential for exploitation.
    • Current legal frameworks struggle to regulate powerful economic interests in human genetic resources.
    • Developments in consent procedures acknowledge power imbalances but do not fully resolve the ethical concerns of commodification.

    Conclusions:

    • Refined consent procedures are a step towards protecting vulnerable genetic communities in biotechnology research.
    • The fundamental ethical questions surrounding the commodification of human tissue and the genome remain unresolved.
    • Further legal and ethical deliberation is needed to address the inherent injustices in the biotechnology "gold rush."
    Keywords:
    Analytical ApproachBiomedical and Behavioral ResearchGenetics and ReproductionHuman Genetics Commission (Great Britain)Moore v. Regents of the University of California

    Related Experiment Videos