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Conducting a client-focused survey using e-mail.

Catherine Yetter Read1

  • 1William F. Connell School of Nursing at Boston College, Chestnut Hill, MA 02467, USA. readca@.edu.

Computers, Informatics, Nursing : CIN
|November 3, 2004
PubMed
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This study explored psychological responses in phenylketonuria (PKU) gene carriers. Email recruitment and surveys were efficient, but privacy concerns may have impacted participation rates.

Area of Science:

  • Psychology
  • Genetics
  • Public Health

Background:

  • Phenylketonuria (PKU) is a rare genetic disorder.
  • Understanding the psychological impact on gene carriers is crucial for support.
  • Carrier status can evoke unique emotional and social responses.

Purpose of the Study:

  • To investigate the psychological responses of individuals carrying the gene for phenylketonuria (PKU).
  • To assess the feasibility and effectiveness of using email for participant recruitment and data collection in genetic studies.
  • To explore researcher-participant interaction opportunities via email compared to web-based surveys.

Main Methods:

  • Utilized an email listserv for participant recruitment and survey administration.
  • Collected data on psychological responses from PKU gene carriers.

Related Experiment Videos

  • Employed email for sending electronic gift certificates and disseminating study findings.

    • Main Results:

    • The majority of participant responses were received within 24 hours of the recruitment call.
    • Most surveys (n=83) were returned via email within 5 days.
    • Email facilitated greater researcher-participant interaction than web-based surveys.

    Conclusions:

    • Email is an efficient tool for recruiting participants and collecting data in genetic studies.
    • A 51% survey return rate suggests potential participant concerns regarding email privacy.
    • Further research is needed to address privacy issues in email-based genetic research.