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Aging with multiple sclerosis.

Marcia Finlayson1, Toni Van Denend, Elizabeth Hudson

  • 1Department of Occupational Therapy, University of Illinois at Chicago, USA. marciaf@uic.edu

The Journal of Neuroscience Nursing : Journal of the American Association of Neuroscience Nurses
|November 5, 2004
PubMed
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People aging with multiple sclerosis (MS) report reduced freedom and unmet needs. Neuroscience nurses must address these challenges by providing comprehensive health and social support.

Area of Science:

  • Neuroscience
  • Gerontology
  • Nursing

Background:

  • Multiple sclerosis (MS) typically does not reduce life expectancy.
  • Little research exists on the experiences and concerns of older adults with MS.
  • A gap in literature was identified regarding "multiple sclerosis," "nursing," and "aging."

Purpose of the Study:

  • To explore the health concerns and service needs of individuals aged 55 and older with MS.
  • To foster dialogue on the role of nurses in supporting aging individuals with MS.
  • To understand the lived experiences of aging with MS.

Main Methods:

  • A cross-sectional descriptive study.
  • Qualitative interviews with 27 participants (55+ years old) with MS.
  • Administration of standardized instruments to assess health concerns and needs.

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Main Results:

  • Participants perceived reduced freedom and increased need for assistance compared to peers without MS.
  • Standardized instrument scores corroborated these perceptions.
  • Identified unmet needs include housework, physical therapy, support groups, social activities, personal care, and care coordination.

Conclusions:

  • Neuroscience nurses require awareness and sensitivity to the challenges of aging with MS.
  • Nurses should be prepared to offer information, resources, and referrals for health, social, and wellness services.
  • Addressing unmet needs is crucial for improving the quality of life for older adults with MS.