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Published on: August 8, 2019
Assessing palliative care outcomes for people with motor neurone disease living at home
Rhidian A Hughes1, Fiona Aspinal, Irene J Higginson
1Centre for Health and Social Care, School for Policy Studies, University of Bristol, Bristol, BS8 1TZ, UK. rhidian.hughes@ukonline.co.uk
Abstract:
A number of palliative care outcome measures are used to facilitate the provision of palliative care. This short article reports the use of one palliative care outcome measure, the Palliative care Outcome Scale, with people with motor neurone disease (MND) living at home. The outcome measure was generally viewed positively by those involved. However, problems with this scale itself point to the need for a specialized instrument to assess palliative care outcomes for people living with MND.
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