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Wisconsin Birth Defects Registry collecting data

Elizabeth Oftedahl1, Richard M Pauli, Sharon Fleischfresser

  • 1Children with Special Health Care Needs , Bureau of Community Health Promotion, Wisconsin Department of Health and Family Services, USA.

WMJ : Official Publication of the State Medical Society of Wisconsin
|November 24, 2004
PubMed

Insights

Wisconsin established the Birth Defects Registry (WBDR) in 2000 to track birth defects. Since 2004, it has collected data on children up to age 2 with diagnosed conditions.

Area of Science:

  • Public Health Surveillance
  • Pediatric Epidemiology
  • Reproductive Health

Background:

  • Wisconsin Statute 253.12, enacted in May 2000, established the Wisconsin Birth Defects Registry (WBDR).
  • The WBDR replaced the Birth and Developmental Outcome Monitoring Program, a system initiated in 1989.
  • This initiative aimed to improve the tracking and understanding of birth defects and developmental disabilities in Wisconsin.

Purpose of the Study:

  • To describe the development and implementation of the Wisconsin Birth Defects Registry (WBDR).
  • To outline the scope of data collection for children with birth defects.
  • To establish reporting expectations for healthcare providers regarding birth defects.

Main Methods:

  • The Wisconsin Birth Defects Registry (WBDR) began data collection in the summer of 2004.
  • The registry collects demographic, diagnostic, and identifying information.
  • Data focuses on children from birth to 2 years of age with reportable birth defects receiving healthcare in Wisconsin.

Main Results:

  • The registry successfully transitioned from its predecessor system.
  • Established a system for collecting comprehensive data on pediatric birth defects.
  • Defined the population and types of information to be collected for surveillance.

Conclusions:

  • The Wisconsin Birth Defects Registry (WBDR) provides a vital public health surveillance tool.
  • The registry enhances the ability to monitor and understand the burden of birth defects in Wisconsin's children.
  • Clear reporting expectations are crucial for the registry's effectiveness and ongoing data quality.

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