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Genes and equality.

C Farrelly1

  • 1Department of Political Science, University of Waterloo, 200 University Avenue, West Waterloo, Canada N2L 3G1. farrelly@uwaterloo.ca

Journal of Medical Ethics
|December 3, 2004
PubMed
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Equality values shape views on genetic interventions. Egalitarianism, when refined, suggests prioritizing the worst-off, potentially altering policy recommendations for gene therapies and enhancements.

Area of Science:

  • Bioethics
  • Philosophy of Medicine
  • Social Justice

Background:

  • Societal values regarding equality significantly impact the regulation of genetic interventions.
  • Existing frameworks for equality need re-evaluation in the context of emerging biotechnologies.

Purpose of the Study:

  • To apply Derek Parfit's taxonomy of equality to the regulation of genetic interventions.
  • To critically assess egalitarian approaches to genetic enhancement and therapy policy.

Main Methods:

  • Philosophical analysis using Parfit's equality taxonomy (telic and deontic egalitarianism).
  • Examination of prioritarianism as a refined ethical framework.
  • Consideration of practical factors influencing policy decisions.
Keywords:
Analytical ApproachGenetics and ReproductionPhilosophical Approach

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Main Results:

  • Telic egalitarianism is deemed untenable.
  • Deontic egalitarianism is shown to converge with prioritarianism.
  • Prioritarianism emphasizes benefiting the worst-off individuals.

Conclusions:

  • Regulating genetic interventions requires considering the least advantaged, economic realities, and budget constraints.
  • The interconnectedness of genetic information presents further regulatory challenges.
  • Egalitarians may need to revise their policy stances on gene therapies and enhancements based on these considerations.