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Towards disability ethics: a social science perspective.

Rhonda Shaw1, Martin Sullivan

  • 1Foundation for Research on Science and Technology, New Zealand.

New Zealand Bioethics Journal
|December 16, 2004
PubMed
Summary

Disability ethics should integrate social and embodied aspects of impairment, moving beyond a narrow focus on medical conditions. This approach considers the moral relations between disabled and non-disabled individuals, questioning the adequacy of bioethics alone.

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Area of Science:

  • Social Sciences
  • Disability Studies
  • Ethics

Background:

  • Social science debates on subjectivity and identity increasingly integrate discursive and material perspectives.
  • This integration has significant implications for developing frameworks for disability ethics.
  • Recent work in disability theory and sociology of ethics informs this discussion.

Purpose of the Study:

  • To propose a framework for disability ethics that reconciles social and embodied aspects of disability.
  • To argue for reclaiming the social dimensions of impairment alongside its embodied experiences.
  • To question the sufficiency of a bioethics framework for addressing disability ethics comprehensively.

Main Methods:

  • Conceptual analysis drawing on social sciences, disability theory, and sociology of ethics.
Keywords:
Bioethics and Professional EthicsHealth Care and Public Health

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  • Integration of discursive and material perspectives on subjectivity and identity.
  • Examination of the relationship between social/cultural construction of impairment and moral/existential relations.

    • Main Results:

    • Disability ethics should encompass both the social and embodied aspects of impairment.
    • The social and cultural construction of abnormal corporeality is inseparable from inter-personal moral and existential relations.
    • A purely bioethical approach may be inadequate for a holistic understanding of disability ethics.

    Conclusions:

    • A comprehensive disability ethics requires a framework that moves beyond a sole focus on impairment.
    • It must actively integrate the social construction of impairment with embodied experiences.
    • The moral and existential dimensions of relations between disabled and non-disabled individuals are crucial.