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Updated: Jul 27, 2026

A Protocol for Comprehensive Assessment of Bulbar Dysfunction in Amyotrophic Lateral Sclerosis (ALS)
Published on: February 21, 2011
Grief support for informal caregivers of patients with ALS: a national survey
R S Hebert1, D Lacomis, C Easter
1Division of General Medicine, Section of Palliative Care and Medical Ethics, MUH 933 W, 200 Lothrop Street, Pittsburgh, PA 15213, USA. hebertrs@msx.upmc.edu
Abstract:
Providing emotional support to caregivers is integral to comprehensive ALS care. The authors surveyed ALS Association centers and clinics and Muscular Dystrophy Association/ALS centers. Respondents thought that grief and bereavement support was integral to ALS care but thought that the support provided by their centers was often inadequate.
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