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Updated: Aug 20, 2026

Implantation of Total Artificial Heart in Congenital Heart Disease
Published on: July 18, 2014
[Adult patients with congenital heart abnormalities: present and future]
1Klinik für Kinderkardiologie und angeborene Herzfehler, Deutsches Herzzentrum München, Klinik an der Technischen Universität. Kaemmerer@dhm.mhn.de
Insights
Advances in treatment have significantly reduced congenital heart disease mortality, allowing over 80% of affected children to reach adulthood. Lifelong monitoring and multidisciplinary care are crucial for managing residual issues in adults with congenital heart anomalies.
Area of Science:
- Cardiology
- Pediatric Cardiology
- Cardiac Surgery
Context:
- Congenital heart disease (CHD) incidence is 8-10 per 1000 live births.
- Medical and surgical advancements have decreased CHD mortality from 80% to 20%.
- Over 80% of children with CHD now survive into adulthood, with approximately 150,000 adults living with significant congenital heart anomalies in Germany.
Purpose:
- To highlight the evolving landscape of congenital heart disease management.
- To emphasize the necessity of lifelong, specialized follow-up care for adults with CHD.
- To underscore the importance of a multidisciplinary approach in managing complex congenital heart defects.
Summary:
- Significant progress in pediatric heart surgery, medical treatments, and interventional cardiology has dramatically improved survival rates for congenital heart disease.
- While curable in some cases (e.g., patent Ductus Botalli, small atrial septal defects), most congenital heart defects require ongoing monitoring due to potential residual issues or sequelae.
- The growing population of adults with congenital heart anomalies necessitates continuous, specialized care from childhood through adulthood, involving a coordinated effort among various medical specialists.
Impact:
- Improved survival rates and quality of life for individuals with congenital heart disease.
- Increased demand for specialized adult congenital heart disease (ACHD) programs and long-term care strategies.
- Necessity for interdisciplinary collaboration among cardiologists, pediatric cardiologists, cardiac surgeons, and other healthcare professionals for optimal patient outcomes.
Abstract:
The incidence of congenital heart disease is 8 to 10 per 1000 newborn. Due to the advances of heart surgery, medical treatment and interventional cardiology the primarily high mortality rate of relevant congenital heart disease has declined from 80 % to 20 %. Nowadays more than 80 % of children with relevant congenital heart disease reach adulthood. Currently approx. 150 000 adults with significant congenital heart anomalies live in Germany presently. Their number is rising continuously. With the exception of an patent Ductus Botalli and a small atrial septal defect, which could be operated in early childhood curatively, all other congenital heart defects need regular control, since even after successful primary interventional or operative treatment significant residue or sequelae have to be expected. Optimal care of these patients begins in the childhood and must be continued down to the high adulthood. Almost all of them need a careful follow-up in order to recognize residue or sequelae and to treat them in time. The complexity of many congenital heart defects makes a multidisciplinary approach necessary. A specialized, interdisciplinary cooperation between cardiologists, pediatric cardiologists, cardiac surgeons and other specialists is mandatory.
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