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Related Experiment Videos

Development and validation of a Breast Cancer Genetic Counseling Knowledge Questionnaire.

Joel Erblich1, Karen Brown, Youngmee Kim

  • 1Derald H. Ruttenberg Cancer Center, Mount Sinai School of Medicine, One Gustave L. Levy Place, Box 1130, New York, NY 10029-6574, USA. joel.erblich@mssm.edu

Patient Education and Counseling
|January 18, 2005
PubMed
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A new Breast Cancer Genetic Counseling Knowledge Questionnaire (BGKQ) was developed and validated. This tool accurately measures women's understanding of genetic counseling information for breast cancer risk.

Area of Science:

  • Oncology
  • Genetics
  • Health Psychology

Background:

  • Women at increased risk for breast cancer receive complex information during genetic counseling.
  • Many women struggle to retain information post-counseling, highlighting a need for knowledge assessment tools.

Purpose of the Study:

  • To develop and validate a reliable questionnaire to assess knowledge gained from breast cancer genetic counseling.
  • To establish a tool for evaluating the effectiveness of genetic counseling and its impact on patient understanding.

Main Methods:

  • Empirical item derivation from content analysis of counseling sessions.
  • Content validity assessed via interrater agreement (0.93).
  • Reliability and factor structure determined using data reduction and confirmatory factor analysis (CFA), yielding a 27-item BGKQ (alpha = 0.92).

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Main Results:

  • The BGKQ demonstrated high content validity and reliability.
  • The BGKQ showed superior criterion validity compared to a previous scale when comparing counseled (n=28) versus non-counseled (n=45) groups (p < 0.0001).

Conclusions:

  • The Breast Cancer Genetic Counseling Knowledge Questionnaire (BGKQ) is a validated instrument for assessing knowledge retention after genetic counseling.
  • The BGKQ can serve as a valuable tool in clinical and research settings to evaluate counseling effectiveness and explore factors influencing knowledge acquisition and subsequent behaviors.