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Ethics and intellectual disability.

J Clegg1

  • 1Department of Learning Disabilities, Highbury Hospital, Bulwell, Nottingham NG6 9DR, UK. Jennifer.Clegg@Nottingham.ac.uk

Current Opinion in Psychiatry
|February 22, 2005
PubMed
Summary
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This study explores ethical standards in research sharing, advocating for legal enforcement over moral persuasion. It emphasizes building ethical relationships with individuals with intellectual disabilities, prioritizing this over assessments of client competency.

Area of Science:

  • Bioethics
  • Research Ethics
  • Disability Studies

Background:

  • Evolving research sharing practices necessitate a re-evaluation of ethical enforcement.
  • Traditional moral stances may be insufficient for upholding ethical standards in research.

Purpose of the Study:

  • To examine the shift towards legal enforcement of ethical standards in research sharing.
  • To explore ethical concerns, including consent and rights, within the context of intellectual disability research.
  • To propose a framework prioritizing ethical relationships over client competency.

Main Methods:

  • Analysis of ethical considerations in research sharing.
  • Application of virtue ethics to address lacunae in the field.
  • Discussion of concepts like quality of life, person-centered planning, and normalization.
Keywords:
Biomedical and Behavioral ResearchMental Health TherapiesProfessional Patient Relationship

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Main Results:

  • A legalistic approach may be considered for enforcing ethical standards in research.
  • Ethical challenges include consent and balancing individual versus collective rights.
  • Virtue ethics offers a lens to examine existing gaps in ethical research practices.

Conclusions:

  • Developing robust ethical relationships with individuals with intellectual disabilities is paramount.
  • The principle of ethical relationship development supersedes the assessment of client competency.
  • This approach ensures a more person-centered and ethically sound research environment.