The development and implementation of patients' rights: Dutch experience of the right to information

Many initiatives have been taken to advocate, develop and emphasize patients' rights. The existence of legislation, case law or charters in the area of patients' rights does not guarantee that these rights are or will be successfully implemented in everyday practice. The implementation of patients' rights requires specific actions and expertise. It is important to develop strategies to enhance the successful implementation of patients' rights. This is illustrated by using the example of the developments in the Netherlands regarding the patient's right to information. This development shows that legal interventions, such as legislation, will always have to be embedded in and/or supplemented by non-legal policy measures. This calls for a broad and well-considered implementation policy, including items at various levels (legislation, patient and patient organizations, health providers and health institutions, contextual conditions). Such a strategy calls for a multidisciplinary approach, involving input from the areas of law, ethics, medicine, the sciences etc.