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[The pediatric-to-adult transit clinic as a quality-securing measure in endocrinological diseases]
1Zentrum für Kinderheilkunde und Jugendmedizin Charité Berlin. annette.grueters@charite.de
Insights
Structured transit clinics are crucial for pediatric patients with endocrinological diseases transitioning to adulthood. This ensures continuity of care and leverages pediatric expertise for better adult outcomes.
Area of Science:
- Pediatric Endocrinology
- Transition Medicine
- Healthcare Quality Management
Background:
- Pediatric endocrinology care has advanced significantly in the last 20 years, improving life expectancy and quality of life for chronic endocrine conditions.
- A lack of long-term data and experience exists for adult outcomes due to the relatively recent improvements in pediatric care.
Purpose of the Study:
- To highlight the necessity of structured transit clinics for pediatric endocrinology patients.
- To ensure the continuity and quality of care as patients transition from pediatric to adult healthcare systems.
- To adapt successful pediatric care models for adult endocrinology patients.
Main Methods:
- Leveraging existing pediatric care experience and results.
- Adapting pediatric care protocols to meet the specific needs of adult patients.
- Implementing joint medical counseling and care services.
- Continuing the utilization of non-medical pediatric support services.
Main Results:
- Structured transit clinics are essential for maintaining high-quality care standards.
- Adaptation of pediatric care models is necessary for successful transition.
- Additional resources are required for effective transition services, including joint counseling and non-medical support.
Conclusions:
- Structured transit clinics are a prerequisite for quality care in adult endocrinology.
- The German Health Care Modernization Act (Gesundheitsmodernisierungsgesetz, GMG) provides a basis for implementing these models.
- Rapid implementation of these structures is vital for quality control and improved patient outcomes.
Abstract:
The establishment of structured transit clinics for pediatric patients with endocrinological diseases entering adulthood is a prerequisite for ensuring the quality of care for patients with chronic endocrine diseases. Since such patients have been receiving constant special pediatric care on a large scale only during the last 20 years, and only now is an improvement in life expectancy and quality of life becoming evident for the individual diseases, a comprehensive store of experience, or even of evaluated data, is lacking. In order to preserve the quality achieved in pediatric care, transitional structures must initially utilize the experience and results achieved in the pediatric setting, and adapt them to the requirements of adult patients. This is an ongoing process, and additional resources are required for the transition, e.g. for joint medical counseling and care, as also for the continuing utilization of non-medical pediatric services. The basis for the implementation of such models is, in principle, provided by the Gesundheitsmodernisierungsgesetz, GMG (health care modernization act), and, for reasons of quality control, the necessary structures should be put in place as quickly as possible.
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