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Related Experiment Videos

Finding the balance: living with memory loss.

Jean A Gilmour1, Annette D Huntington

  • 1School of Health Sciences, Massey University at Wellington, Wellington, New Zealand. J.A.Gilmour@massey.ac.nz

International Journal of Nursing Practice
|April 28, 2005
PubMed
Summary

People with dementia can share their experiences and coping strategies. Understanding their reality is crucial for reducing anxiety and depression, guiding better nursing care for memory loss conditions.

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Area of Science:

  • Gerontology
  • Neuroscience
  • Qualitative Health Research

Background:

  • Historically, dementia research overlooked the lived experiences of individuals with dementia.
  • Recent acceptance acknowledges that people with dementia possess valuable insights into their condition.
  • Participant perspectives are vital for comprehensive dementia and memory loss research.

Purpose of the Study:

  • To explore the lived experiences of individuals with dementia.
  • To identify coping strategies employed by people with dementia.
  • To inform healthcare practices, particularly nursing, regarding dementia care.

Main Methods:

  • A qualitative research approach was utilized.
  • Semi-structured interviews were conducted with nine participants diagnosed with dementia.

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  • Thematic analysis was applied to interpret interview data.

    • Main Results:

    • Three predominant themes emerged from the analysis: acceptance of memory loss, preservation of control and independence, and the influence of dementia on interpersonal relationships.
    • Participants actively employ coping mechanisms to navigate their condition.
    • Understanding individual realities is essential to counter negative portrayals of dementia.

    Conclusions:

    • The study highlights the importance of incorporating the perspectives of people with dementia in research and care.
    • Effective nursing practice requires sensitive, ongoing communication and support for active coping strategies.
    • Addressing the lived reality of dementia can mitigate associated anxiety and depression.