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Multiple sclerosis and continence issues: an exploratory study
Judy Wollin1, Mary Bennie, Christine Leech
1Griffith University, Queensland, Australia.
British Journal of Nursing (Mark Allen Publishing)
|June 1, 2005
Summary
Urinary incontinence significantly impacts individuals with multiple sclerosis (MS). While many with MS experience incontinence, only a third sought help from a continence nurse due to various barriers.
Area of Science:
- Neurology
- Urology
- Public Health
Background:
- Multiple sclerosis (MS) is a chronic neurological disease.
- Incontinence is a common and often debilitating symptom in people with MS.
- The impact of incontinence on quality of life for MS patients requires further investigation.
Purpose of the Study:
- To identify incontinence issues in people with MS.
- To assess the impact of referral to a continence adviser on their lives.
- To understand barriers to seeking continence care.
Main Methods:
- An in-depth, two-phase anonymous mail survey was conducted.
- Participants were individuals with multiple sclerosis (MS) within the general community.
- Fifty-six people participated in phase 1, and eleven completed phase 2.
Main Results:
- Incontinence affects the vast majority of people with MS surveyed.
- One-third of eligible participants utilized continence nurse services.
- Barriers to seeking care included perceived self-management, skepticism about help, embarrassment, and time constraints.
Conclusions:
- Urinary incontinence is a prevalent issue for people with MS.
- Awareness and education about available incontinence management options are crucial.
- Targeted outreach to at-risk groups can improve access to continence care.