Long-term psychosocial outcomes reported by children and adolescents with inflammatory bowel disease

Laura M Mackner1, Wallace V Crandall

  • 1Department of Pediatrics, Division of Psychology, The Ohio State University, Columbus Children's Hospital, Columbus, Ohio 43205, USA.

Insights

Children with inflammatory bowel disease (IBD) generally show normal psychosocial functioning, similar to healthy peers. However, a small group experiences significant behavioral/emotional issues, warranting further investigation for targeted support.

Area of Science:

  • Pediatric gastroenterology
  • Child psychology
  • Chronic disease management

Background:

  • Inflammatory bowel disease (IBD) significantly impacts children's lives.
  • Understanding the psychosocial well-being of pediatric IBD patients is crucial for comprehensive care.
  • Previous research highlights potential challenges in behavioral and emotional functioning for children with chronic illnesses.

Purpose of the Study:

  • To compare psychosocial functioning in children with IBD versus healthy children.
  • To assess behavioral/emotional functioning, social competence, self-esteem, coping strategies, and social support.
  • To identify potential differences in psychosocial adjustment between these groups.

Main Methods:

  • A cohort of 50 children diagnosed with IBD for at least one year was compared to 42 healthy children (ages 11-17).
  • Participants completed validated questionnaires on psychosocial functioning.
  • Disease activity was assessed using the Pediatric Crohn's Disease Activity Index for IBD patients.

Main Results:

  • Overall, children with IBD reported normal psychosocial functioning, with no significant group differences in most areas.
  • A subset (20%) of children with IBD experienced clinically significant behavioral/emotional symptoms, similar to the healthy group.
  • Disease activity (past or present) did not predict emotional difficulties in children with IBD.

Conclusions:

  • Most children with mild IBD, diagnosed for over a year, exhibit psychosocial functioning comparable to healthy peers.
  • A notable minority of children with IBD face significant behavioral/emotional challenges.
  • Future research should focus on identifying at-risk children and developing effective interventions for psychosocial difficulties in pediatric IBD.
Abstract

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