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How Guillain-Barre patients experience their functioning after 1 year
Robert A J A M Bernsen1, Aeiko E J de Jager, Frans G A van der Meché
1Department of Neurology, Jeroen Bosch Hospital, 's-Hertogenbosch, the Netherlands. r.bernsen@jbz.nl
Objective:
To analyze how the patient himself perceives his physical and social situation 1 year after Guillain-Barre syndrome (GBS).
Material And Method:
The Dutch patients who participated in an international multicenter trial were asked to complete a self-administered questionnaire containing questions on their physical status at homecoming and at 12 months, as well as questions dealing with various aspects of their social condition.
Results:
Ninety patients participated. Up to 72% had sensory disturbances and loss of power in part of the arms and up to 89% in part of the legs at homecoming. At 12 months, a significant improvement had occurred, but residua were perceived in 36 and 67%, respectively. The residua ranged from irritating to seriously disturbing in up to 49%, and only 33% felt completely cured. Furthermore, 32% had changed their work due to GBS, 30% did not function at home as well as before and 52% had altered their leisure activities.
Conclusion:
One year after the onset of GBS, a considerable number of patients still perceived a decrease of power and sensation with an often disturbing effect. GBS had an evident impact on daily life and social well-being.

