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Published on: July 14, 2023
Ethical considerations in neonatal respiratory care
Marcello Orzalesi1, Marina Cuttini
1Bambino Gesù Children's Hospital, Rome, Italy. orzalesi@opbg.net
Insights
Decisions about neonatal intensive care involve ethical considerations when survival means suffering. Withholding or withdrawing life support may be a compassionate choice in specific critical infant cases.
Area of Science:
- Neonatal Medicine
- Medical Ethics
- Bioethics
Background:
- Advances in neonatal care have improved survival rates for critically ill and preterm infants.
- The concept of viability has shifted, leading to complex ethical dilemmas.
- Intensive care can prolong life but may also cause suffering or severe disabilities.
Purpose of the Study:
- To review the ethical principles guiding decisions on neonatal intensive care withdrawal.
- To identify circumstances necessitating consideration of withholding or withdrawing life support.
- To explore the role of parents and neonatologists in these critical decisions.
Main Methods:
- Literature review of ethical principles in neonatal end-of-life care.
- Analysis of common scenarios in neonatal intensive care units (NICUs).
- Examination of parental involvement and neonatologist practices in decision-making.
Main Results:
- Ethical frameworks support withholding/withdrawing care when it prolongs suffering without benefit.
- Decisions are complex, involving infant prognosis, quality of life, and parental values.
- Neonatologist practices vary across American and European NICUs.
Conclusions:
- Withholding or withdrawing mechanical ventilation and other intensive treatments may be ethically appropriate.
- Shared decision-making involving parents, medical teams, and ethics committees is crucial.
- Understanding and addressing variations in neonatologist behavior is important for consistent ethical care.
Abstract:
Recent advances in neonatal care have greatly improved the chances for survival of very sick and/or very preterm neonates and have in fact changed the concept and the limits of viability. However, in some situations, when the infant's demise can only be postponed at the price of great suffering or when survival is associated with severe disabilities and an intolerable life for the patient and the parents, it may be unwise to employ the full armamentarium of modern neonatal intensive care. In those circumstances withholding or withdrawing mechanical ventilation and other life-saving, though invasive and painful, procedures might be a better option. This review examines the ethical principles underlying those difficult decisions, the most frequent circumstances where they should be considered, the role of parents and other parties in the decision-making process and the reported behavior of neonatologists in many American and European neonatal intensive care units.
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