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Evaluating physical function in an adolescent bone tumor population.

P Janine Pakulis1, Nancy L Young, Aileen M Davis

  • 1Department of Rehabilitation, Hospital for Sick Children, Toronto, Ontario, Canada. janine.pakulis@sickkids.ca

Pediatric Blood & Cancer
|July 28, 2005
PubMed
Summary

Identifying a reliable physical functioning measure for adolescents with bone tumors is crucial. The Toronto Extremity Salvage Score (TESS), Pediatric Outcomes Data Collection Instrument (PODCI), and Activities Scale for Kids (ASK) show promise for future research.

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Area of Science:

  • Orthopedics
  • Pediatric Oncology
  • Rehabilitation Medicine

Background:

  • Survival rates for bone tumors have improved, yet functional limitations persist in adolescents.
  • A standardized measure for adolescent sarcoma physical functioning is lacking.
  • This review addresses the need for evaluating physical functioning in young sarcoma patients.

Purpose of the Study:

  • To identify and evaluate measures of physical functioning for adolescent sarcoma patients.
  • To review existing pediatric physical functioning measures for applicability.
  • To recommend suitable instruments for future research.

Main Methods:

  • Searched electronic databases for studies from 1980-2004.
  • Included studies on adolescent sarcoma physical functioning and pediatric measures.

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  • Evaluated measures based on applicability and feasibility criteria.

    • Main Results:

    • Reviewed measures used in adolescent bone tumors: Musculoskeletal Tumor Society, Mankin, Groningen Activity Restriction Scale, Toronto Extremity Salvage Score (TESS).
    • Examined pediatric measures: Functional Disability Inventory, Pediatric Outcomes Data Collection Instrument (PODCI), Activities Scale for Kids (ASK).
    • TESS, PODCI, and ASK met key applicability and feasibility criteria.

    Conclusions:

    • Selecting a physical functioning measure requires addressing developmental and measurement challenges.
    • TESS, PODCI, and ASK are recommended for further evaluation.
    • Reliability, validity, and responsiveness testing is needed before widespread use in adolescent sarcoma patients.