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Related Experiment Videos

Terminal restlessness as perceived by hospice professionals.

Barbara Head1, Annatje Faul

  • 1University of Louisville, School of Medicine, Louisville, Kentucky, USA.

The American Journal of Hospice & Palliative Care
|August 9, 2005
PubMed
Summary

Terminal restlessness is a distressing end-of-life symptom. Hospice clinicians

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Area of Science:

  • Palliative Care
  • Gerontology
  • Psychosocial Medicine

Background:

  • Terminal restlessness is a distressing end-of-life syndrome impacting patients, families, and caregivers.
  • Causes are often attributed to physical factors like medication toxicity, organ failure, pain, and hypoxia, but psychosocial and spiritual distress are also recognized.
  • Existing literature and clinical experience highlight the challenges in managing this condition.

Purpose of the Study:

  • To compare hospice clinicians' perceptions of terminal restlessness with existing literature.
  • To assess the agreement between clinicians' experiences and the established scale for terminal restlessness.

Main Methods:

  • A study was conducted involving practicing hospice clinicians.
  • Data collection likely involved surveys or interviews to gather perceptions and experiences.
  • Findings were compared against established literature and a specific terminal restlessness scale.

Main Results:

  • Study findings generally aligned with the literature regarding the frequency, definition, causes, and behavioral manifestations of terminal restlessness.
  • Clinicians emphasized the significant role of psychosocial and spiritual factors in terminal restlessness.
  • Clinicians' definitions included distress (emotional, physical, spiritual), changes in consciousness, and increased activity, but did not support impaired consciousness or withdrawal as components.

Conclusions:

  • Hospice clinicians' understanding of terminal restlessness largely mirrors existing literature, particularly concerning its multifaceted causes.
  • The study validates the importance of addressing emotional, physical, and spiritual distress in managing end-of-life symptoms.
  • The established terminal restlessness scale may require revision to better reflect clinical experience, specifically regarding impaired consciousness and withdrawal.

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