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Related Experiment Videos

IDEA (Intellectual Disability Exploring Answers): a population-based database for intellectual disability in Western

B Petterson1, H Leonard, J Bourke

  • 1TICHR, Centre for Child Health Research, University of Western Australia, Perth, Australia. beverlyp@ichr.uwa.edu.au

Annals of Human Biology
|August 13, 2005
PubMed
Summary
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Intellectual disability (ID) is under-researched, yet the IDEA database in Western Australia provides vital population data. This infrastructure aids research and service planning for individuals with ID.

Area of Science:

  • Public Health
  • Epidemiology
  • Disability Studies

Background:

  • Intellectual disability (ID) is a significant public health concern with unclear causes in over 50% of cases.
  • Accurate prevalence data for ID is limited, ranging from 0.5% to 3.0% globally.
  • Existing research and service provision for ID face challenges due to data scarcity.

Purpose of the Study:

  • To describe the Intellectual Disability Exploring Answers (IDEA) database in Western Australia.
  • To establish an infrastructure for ongoing research and service planning for individuals with ID.
  • To improve population-based ascertainment of ID.

Main Methods:

  • The IDEA database collects ongoing, population-based data on ID from clinical and educational service providers in Western Australia.

Related Experiment Videos

  • Data linkage with other state databases is a potential feature.
  • Analysis of birth and defect data for children with ID born between 1980-1999.
  • Main Results:

    • The average prevalence of ID in Western Australian children born between 1983-1996 was 15.2 per 1000 live births.
    • Fifty percent of ID cases were identified solely through the education system.
    • Children with ID born 1980-1999 had a 6.5 times higher prevalence ratio of birth defects compared to the general population.

    Conclusions:

    • The IDEA database provides essential infrastructure for understanding and addressing intellectual disability in Western Australia.
    • Population-based data collection is crucial for effective service planning and research in ID.
    • Birth defects are significantly more common in individuals with intellectual disability.