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Published on: November 30, 2010
Educational and nursing problems of parents of children with stoma
B Olejnik1, E Maciorkowska, T Lenkiewicz
1Department of Pediatric Nursing, Medical University of Białystok, Poland.
Insights
Parents of children with congenital intestinal stoma need comprehensive education for home care. Nurses play a vital role in preparing parents, improving their confidence and reducing stoma-related complications.
Area of Science:
- Pediatric Surgery
- Gastroenterology
- Nursing Education
Background:
- Children with congenital lower alimentary defects often require intestinal stoma (ostomy) as part of their treatment.
- These children need continuous medical, nursing, and parental care at home.
- Parental preparedness is crucial for managing stoma care and preventing complications.
Purpose of the Study:
- To analyze the educational and nursing challenges faced by parents of children with intestinal stoma.
- To assess the impact of nursing support on the quality of home stoma care.
- To define the nurse's educational role in preparing parents for home stoma management.
Main Methods:
- A questionnaire-based study involving 30 parents of children aged 0-2 years with congenital lower alimentary defects and intestinal stoma.
- Data collection focused on parental experiences, educational needs, and observed complications.
Main Results:
- Hirschsprung disease (40%) and anal atresia (37%) were primary causes for stoma formation.
- Over 80% of parents successfully changed stoma bags with medical staff presence, indicating knowledge transfer.
- Common stoma complications included skin changes (33%), hemorrhage (20%), prolapse (13%), and narrowing (10%).
Conclusions:
- Parental education provided in the hospital significantly aids in home stoma care.
- Nurses are essential in equipping parents with the skills and confidence for managing pediatric intestinal stoma.
- Targeted nursing education can mitigate stoma-related complications and improve patient outcomes.
Abstract:
In children, it is usually one of the stages of treatment of lower alimentary congenital defects. Such patients require long-term professional medical and nursing attention as well as solicitous care of the parents at home. The aim of the study was the analysis of educational and nursing problems that are faced by parents of children with stoma, the influence of a nurse on the quality of their care, and determination of nurse educational assignment in preparing the parents for the care at home. The study was performed in the group of 30 parents of children, 0-2 years old, with lower alimentary congenital defects who had intestinal stoma inserted in 2003. The questionnaire revealed that the main causes of the stoma were Hirschsprung disease (40%), anal atresia (37%), perianal fistula, intestinal perforation and necrosis (10% each). All responders stated that the knowledge acquired in the ward was of great help while nursing a child at home. The results showed that above 80% of parents had the opportunity to change the stomal sacks by themselves, once or more times, in the presence of medical staff. Skin changes (33%) were the most common complications in case of stoma, which could encounter for inappropriate care. Other complications included hemorrhage (20%), prolapse (13%), and stoma narrowing (10%).
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