Educational and nursing problems of parents of children with stoma

B Olejnik1, E Maciorkowska, T Lenkiewicz

  • 1Department of Pediatric Nursing, Medical University of Białystok, Poland.

Insights

Parents of children with congenital intestinal stoma need comprehensive education for home care. Nurses play a vital role in preparing parents, improving their confidence and reducing stoma-related complications.

Area of Science:

  • Pediatric Surgery
  • Gastroenterology
  • Nursing Education

Background:

  • Children with congenital lower alimentary defects often require intestinal stoma (ostomy) as part of their treatment.
  • These children need continuous medical, nursing, and parental care at home.
  • Parental preparedness is crucial for managing stoma care and preventing complications.

Purpose of the Study:

  • To analyze the educational and nursing challenges faced by parents of children with intestinal stoma.
  • To assess the impact of nursing support on the quality of home stoma care.
  • To define the nurse's educational role in preparing parents for home stoma management.

Main Methods:

  • A questionnaire-based study involving 30 parents of children aged 0-2 years with congenital lower alimentary defects and intestinal stoma.
  • Data collection focused on parental experiences, educational needs, and observed complications.

Main Results:

  • Hirschsprung disease (40%) and anal atresia (37%) were primary causes for stoma formation.
  • Over 80% of parents successfully changed stoma bags with medical staff presence, indicating knowledge transfer.
  • Common stoma complications included skin changes (33%), hemorrhage (20%), prolapse (13%), and narrowing (10%).

Conclusions:

  • Parental education provided in the hospital significantly aids in home stoma care.
  • Nurses are essential in equipping parents with the skills and confidence for managing pediatric intestinal stoma.
  • Targeted nursing education can mitigate stoma-related complications and improve patient outcomes.

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