Related Experiment Video
Updated: Aug 1, 2026

Using Visual and Narrative Methods to Achieve Fair Process in Clinical Care
Published on: February 16, 2011
Conceptualizing and measuring family quality of life
J A Summers1, D J Poston, A P Turnbull
1University of Kansas, Lawrence, KS 66045, USA. jsummers@ku.edu
Background:
Increasing emphasis on family-centred approaches to services and supports for families of children with disabilities has surfaced the issue of accountability for family outcomes. We present a review of literature about the impacts of children with disabilities on families as a backdrop to proposing family quality of life as a concept that encompasses impacts of disability and one that can be used to assess the impact of supports and services on families.
Method:
We briefly introduce the Beach Center Family Quality of Life Scale, providing information about its factor structure, reliability and convergent validity.
Results:
The Beach Center Family Quality of Life Scale contains 25 items assessing family ratings of importance and satisfaction with five domains: Family interaction, Parenting, Emotional well-being, Physical/material well-being and Disability-related supports.
Conclusion:
We present a framework for utilizing a measure of family quality of life as a long-term outcome in concert with other short-term measures of service outcomes for families.
Related Concept Videos
Qualitative Analysis
For instance, group IV...
Dimensions of Health and Illness
Documentation in Long-Term and Home Healthcare Setting
Long-Term Care Facilities
Qualitative Analysis
There are two main approaches to qualitative analysis:...
Lifestyle Factors and Health
Benefits of Physical Activity
Physical activity, whether through structured exercise or casual activities like walking, biking, or dancing, is a cornerstone of a...
Family Therapy
Strategic Family Therapy
Strategic family therapy emphasizes resolving communication barriers and improving problem-solving abilities...

