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Early oral sensory experiences and feeding development in children with CHARGE syndrome: a report of five cases

Cindy Dobbelsteyn1, Darlene M Marche, Kim Blake

  • 1School of Human Communication Disorders, Dalhousie University, Halifax, Nova Scotia, Canada. cindy.dobbelsteyn@dal.ca

Dysphagia
|September 21, 2005
PubMed

Insights

Children with CHARGE syndrome often have feeding and swallowing issues due to sensory impairments. Early feeding experiences significantly impact oral motor development and can lead to long-term complications.

Area of Science:

  • Pediatric feeding disorders
  • Neurodevelopmental disorders
  • CHARGE syndrome research

Background:

  • Children with CHARGE syndrome frequently exhibit feeding and swallowing difficulties.
  • These challenges can stem from structural anomalies, motor deficits, or oral sensory impairments.
  • Delayed oral feeding and long-term complications are common in this population.

Observation:

  • This study analyzed early oral sensory and feeding experiences in five children with CHARGE syndrome.
  • Methods included medical record review and caregiver questionnaires.
  • Variable early oral sensory experiences were noted across the participants.

Findings:

  • All studied children experienced some difficulty or delay in developing oral feeding and swallowing.
  • The specific nature of these difficulties varied among the children.
  • Potential contributing factors to feeding challenges were explored.

Implications:

  • Understanding early oral sensory experiences is crucial for managing feeding issues in CHARGE syndrome.
  • Interventions may need to address both sensory and motor components of feeding.
  • Further research can refine early identification and support strategies for affected children.

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