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Related Experiment Videos

The expert patient: Illness as practice.

Andrew Edgar1

  • 1Centre for Applied Ethics, University of Wales Cardiff, P.O. Box 94, CF10 3XB Cardiff, UK. edgar@cardiff.ac.uk

Medicine, Health Care, and Philosophy
|October 11, 2005
PubMed
Summary
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This study challenges the Expert Patient initiative

Area of Science:

  • Medical Sociology
  • Philosophy of Medicine
  • Qualitative Health Research

Background:

  • The Expert Patient initiative often emphasizes instrumental reasoning.
  • Chronic illness requires patients to develop interpretive skills beyond technical knowledge.
  • Patient expertise is linked to self-identity and understanding lived experiences.

Purpose of the Study:

  • To critique the over-reliance on instrumental reasoning in the Expert Patient initiative.
  • To propose a broader understanding of patient expertise incorporating hermeneutic skills.
  • To explore how chronic illness can be reframed as a practice through narrative.

Main Methods:

  • Conceptual analysis drawing on philosophical concepts.
  • Interpretation of patient experiences in chronic illness.
Keywords:
Analytical ApproachHealth Care and Public HealthProfessional Patient Relationship

Related Experiment Videos

  • Application of theories from Alasdair MacIntyre and Arthur Frank.

    • Main Results:

    • Patient expertise in chronic illness involves hermeneutic skills for making sense of illness and self.
    • Chronic illness can be viewed as a practice centered on "virtue" and "practice" (MacIntyre).
    • Narrative approaches, like Frank's "wounded story-teller," are crucial for understanding suffering.

    Conclusions:

    • Rethinking patient expertise requires integrating interpretive and narrative dimensions.
    • Fostering a culture of honest storytelling about chronic suffering enriches understanding for patients, physicians, and communities.
    • This approach can renew cultural resources for navigating illness and patienthood.