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Design and psychometric evaluation of the Psychological Adaptation to Genetic Information Scale
Catherine Y Read1, Donna J Perry, Mary E Duffy
1Boston College, Connell School of Nursing, Chestnut Hill, MA 02467, USA. readca@bc.edu
Purpose:
To develop and psychometrically evaluate the Psychological Adaptation to Genetic Information Scale (PAGIS).
Design:
A cross-sectional, Web-based survey of participants (n=323) recruited via Internet electronic mailing lists or Websites for people affected by genetic diseases.
Methods:
Item analysis, confirmatory principal components analysis, and internal consistency reliability using Cronbach's alpha were used to construct the 26-item PAGIS.
Findings:
Five factors (nonintrusiveness, support, self-worth, certainty, and self-efficacy) explained 57.7% of the variance in psychological adaptation to genetic information. The internal consistency reliability of the total PAGIS was .90, and the subscale reliabilities ranged from .77 to .87.
Conclusions:
Psychological adaptation to genetic information is a multidimensional phenomenon comprised of nonintrusiveness, support, self-worth, certainty, and self-efficacy. The PAGIS has initial reliability and validity for use in future research.
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