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Review of homecare packages for paediatric HPN patients

Elaine Sexton1, Jane Coad, Chris Holden

  • 1Birmingham Children's Hospital NHS Trust.

British Journal of Nursing (Mark Allen Publishing)
|November 23, 2005
PubMed

Insights

This study highlights the essential role of tailored nursing homecare packages for children on home parenteral nutrition. Families require comprehensive support addressing physical, psychological, and care burdens for optimal outcomes.

Area of Science:

  • Pediatric Nursing
  • Home Healthcare
  • Parenteral Nutrition

Background:

  • Children requiring home parenteral nutrition (HPN) necessitate specialized nursing care packages.
  • Families of these children face significant physical, psychological, and care burdens.
  • Existing support structures require evaluation to ensure effectiveness and meet evolving needs.

Purpose of the Study:

  • To explore and evaluate the effectiveness of current nursing homecare packages for children receiving HPN.
  • To understand family perspectives on homecare support for children requiring HPN.
  • To inform financial discussions for ensuring high-quality pediatric nursing services.

Main Methods:

  • Qualitative exploration of family experiences with existing nursing homecare packages.
  • Analysis of emergent themes related to family challenges and support needs.
  • Evaluation of the perceived adequacy of current homecare provisions.

Main Results:

  • Three primary themes emerged: physical challenges, psychological impact, and the burden of care.
  • Individualized homecare packages were identified as essential for supporting this vulnerable patient group.
  • A 24-hour on-call service with expert pediatric nursing staff was crucial for family security.

Conclusions:

  • Family-centered homecare packages are vital for children on HPN.
  • While home nursing is advantageous, improvements in social and medical care delivery are necessary.
  • Enhanced support is crucial to meet the complex needs of children on HPN and their families.

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