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Related Experiment Videos

Anaphylaxis: how do you live with it?

Deena Mandell1, Ruth Curtis, Milton Gold

  • 1Faculty of Social Work, Wilfrid Laurier University, Waterloo, Ontario, Canada. dmandell@wlu.ca

Health & Social Work
|December 6, 2005
PubMed
Summary

Coping with a child

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Area of Science:

  • Pediatric Allergy and Immunology
  • Family Psychology
  • Social Work in Healthcare

Background:

  • Limited research exists on the psychosocial aspects of childhood anaphylaxis.
  • Families coping with life-threatening allergies face unique challenges.
  • Existing literature on chronic illness and asthma coping provides a framework.

Purpose of the Study:

  • To explore the experiences and needs of families managing a child's life-threatening allergies.
  • To identify patterns in family adaptation and support requirements.
  • To inform interventions for professionals supporting these families.

Main Methods:

  • Qualitative study involving interviews with parents from 17 families.
  • Explored experiences related to information, support, parenting, activities, anxieties, challenges, and coping strategies.
  • Grounded in literature on family coping with chronic illness, asthma, and allergy.

Main Results:

  • Identified adaptive process patterns in response to developmental and episodic events.
  • Highlighted specific parenting dilemmas, anxieties, and challenges.
  • Revealed varied information and support needs throughout the child's allergy journey.

Conclusions:

  • Families require support to balance protective anxiety with debilitating fear.
  • Social work clinicians and healthcare professionals can play a vital role.
  • Interventions in community and health settings are recommended to aid family adaptation.

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