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Living with disability: part 1.

Claire Thurgate1, Helen Warner

  • 1Canterbury Christ Church University.

Paediatric Nursing
|December 24, 2005
PubMed
Summary
This summary is machine-generated.

This article explores holistic care for children with disabilities and their families, covering terminology, parental reactions, family impact, and social policy. It emphasizes transferable concepts for various care settings.

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Area of Science:

  • Pediatrics
  • Family Studies
  • Social Policy

Background:

  • Children with disabilities require comprehensive, holistic care.
  • Family-centered approaches are crucial for effective support.
  • Understanding the psychosocial impact on families is essential.

Purpose of the Study:

  • To provide an overview of key aspects in the holistic care of children with disabilities.
  • To discuss terminology, parental adjustment, family dynamics, and social policy.
  • To serve as an introductory article for a series on pediatric disability care.

Main Methods:

  • Literature review and synthesis of current knowledge.
  • Exploration of psychosocial aspects of disability diagnosis.
  • Analysis of relevant social policies impacting families.

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Main Results:

  • Common terminology and its implications are clarified.
  • The emotional and practical impact of receiving a disability diagnosis on families is detailed.
  • Key social policy considerations are outlined.

Conclusions:

  • Holistic care for children with disabilities necessitates a family-centered approach.
  • Effective support requires understanding and addressing the multifaceted needs of the entire family system.
  • This article lays the groundwork for further discussion on therapeutic interventions and multidisciplinary collaboration.