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Paediatric home ventilatory support: the Auckland experience
E A Edwards1, K Hsiao, G M Nixon
1Department of Respiratory Medicine, Starship Children's Hospital, Auckland, New Zealand.
Insights
Home respiratory support for children, including continuous positive airway pressure (CPAP) and non-invasive ventilation (NIV), is increasing. Most children improve, but planning is needed for this growing trend.
Area of Science:
- Pediatric Pulmonology
- Respiratory Medicine
- Home Healthcare
Background:
- Home respiratory support for children has become more common.
- The Starship Children's Hospital Respiratory Service manages children requiring ventilatory support.
- Understanding trends and outcomes is crucial for resource allocation.
Purpose of the Study:
- To analyze trends in home respiratory support for children.
- To describe disease categories, intervention success, and outcomes.
- To evaluate the use of CPAP, NIV, and invasive ventilatory support (IVS).
Main Methods:
- Retrospective review of respiratory service records from 1991 to 2004.
- Analysis of 160 children initiated on home CPAP, NIV, or IVS.
- Categorization of indications, support types, and outcomes.
Main Results:
- 160 children received home respiratory support; 69 remain under active management.
- Non-invasive support (CPAP/NIV) was most common (97%).
- Support failed in 11% of cases; 57% discontinued due to medical improvement.
Conclusions:
- There is a clear increasing trend in pediatric home respiratory support.
- Respiratory parenchymal/airway and neuromuscular diseases are primary indications.
- Future planning and resources are essential to meet rising demand.
Objectives:
To examine the trend over time, describe the disease categories treated, intervention success and outcomes of the children treated at home with continuous positive airway pressure (CPAP), non-invasive ventilation (NIV) and ventilation via tracheostomy (invasive ventilatory support, IVS) by the Respiratory Service at the Starship Children's Hospital in Auckland.
Methods:
A retrospective review was undertaken of the Respiratory Service records from November 1991 to February 2004.
Results:
Home CPAP, NIV or IVS was initiated in 160 children (89 boys, median age 6 years) in the study period. Sixty-nine (46 boys) remain on support and are still actively managed by the Starship Respiratory Service, of whom 46% live outside the Greater Auckland Region. Despite 42% of children being less than 5 years of age at initiation of therapy, institution of support failed in only 11%. The majority received treatment by non-invasive mask interface (68% (n = 108) CPAP, 29% (n = 47) NIV), with only 3% (n = 5) supported via tracheostomy. The numbers and complexity of support rose over the 12 years. Respiratory support was discontinued in 57% of cases, after a median of 12.5 months (range 3-52 months); in two-thirds, support was no longer required due to an improvement in the medical condition. The most common indication for support in current patients is respiratory parenchymal or airway disease followed by neuromuscular disease. Obesity is not a common indication.
Conclusion:
This review documents the increasing trend in children receiving respiratory support at home. Future planning and resources are needed to address this growing need.
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