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Parent-identified barriers to pediatric health care: a process-oriented model
Elisa J Sobo1, Michael Seid, Leticia Reyes Gelhard
1Department of Anthropology, San Diego State University, San Diego, CA, USA.
Health Services Research
|January 25, 2006
Summary
Understanding health care barriers requires exploring parents' experiences. Qualitative research reveals how parents navigate systems, identifying key factors for improved patient-centered care and reduced disparities.
Area of Science:
- Health Services Research
- Qualitative Research
- Health Disparities
Background:
- Barriers to healthcare access significantly impact patient outcomes.
- Existing research often focuses on quantitative data, potentially overlooking the nuanced experiences of consumers.
- Understanding the patient journey is crucial for developing effective healthcare strategies.
Purpose of the Study:
- To explore barriers to care from the perspective of healthcare consumers.
- To highlight the value of integrating qualitative and quantitative research methods.
- To develop a process-based model of the parent experience within the healthcare system.
Main Methods:
- Focus groups were conducted with parents of children with special healthcare needs.
- Participants discussed experienced and perceived barriers to care and coping strategies.
- Anthropological discourse analysis was used to develop a conceptual model of the parent experience.
Main Results:
- A parent-motivated model of barriers was identified, enriching quantitative findings.
- Barriers were categorized into six sequential stages: access prerequisites, gaining access, front office, physician interactions, system fragmentation, and outcomes.
- Functional biomedical acculturation was key to successful system navigation.
Conclusions:
- Qualitative analysis provided deeper insights into the "how" and "why" of parental healthcare experiences and disparities.
- Process-oriented models enhance patient-centered care and inform intervention development.
- Qualitative discourse analysis can improve conceptualizations of healthcare constructs and the patient experience.
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