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[Peritoneal dialysis in children: an acceptable solution for patients but a challenge for their families]
Andreas Höher1, Kathrin Sacherer, Klaus Arbeiter
1Universitätsklinik für Kinder- und Jugendheilkunde, Allgemeines Krankenhaus Wien, Wien, Austria. andreas.hoeher@utanet.at
Insights
Children on peritoneal dialysis and their families report high levels of happiness and close relationships. These positive family dynamics challenge perceptions of the treatment
Area of Science:
- Pediatric Nephrology
- Psychosocial Health
- Family Studies
Context:
- Investigating the psychosocial well-being of children undergoing peritoneal dialysis (PD).
- Assessing the mood and family dynamics of children with chronic kidney disease on PD.
- Examining the long-term impact of PD treatment on family relationships.
Purpose:
- To retrospectively evaluate the mood of children receiving peritoneal dialysis.
- To assess the mood and family functioning of families with children on PD.
- To compare the perceived happiness and harmony of families affected by childhood kidney disease with families of healthy children.
Summary:
- Structured questionnaires were used to gather retrospective data on mood and family dynamics.
- Families undergoing or having completed PD treatment reported equal or greater happiness, harmony, and openness compared to families with healthy children.
- The majority of families experienced exceptionally close and positive intimate relationships.
Impact:
- Findings challenge subjective staff evaluations regarding the emotional burden of PD treatment.
- Results contradict objective measures of financial, emotional, and time investments by affected families.
- Highlights the resilience and positive adaptation of families managing pediatric chronic kidney disease.
Abstract:
The aim of this investigation was to gain a retrospective impression of the mood of children undergoing peritoneal dialysis and the mood of their families during the course of their children's disease. The study was carried out at the department of pediatric nephrology (Medical University of Vienna) using structured questionnaires. Interestingly, both the families undergoing treatment and families who had completed treatment considered themselves equally, or even more, happy, harmonic and open than families with healthy children. Retrospectively, intimate relationships experienced by the majority of families were exceptionally close and positive. These findings do not support the subjective evaluation of staff and are contrary to the objective measurability of financial and emotional investment, as well as investment of time, by affected families.
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