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Published on: September 20, 2019
Home enteral feeding audit 1 year post-initiation
S Evans1, C Holden, A MacDonald
1Department of Dietetics, Birmingham Children's Hospital, Birmingham, UK. evanss21@onetel.com
Summary
Families with children on home enteral tube feeding (HETF) face significant challenges, including sleep disruption and frequent tube issues. Addressing these problems is crucial for improving care quality and reducing family stress.
Area of Science:
- Pediatric Gastroenterology
- Home Healthcare
- Family Support Services
Background:
- Home enteral tube feeding (HETF) is a critical intervention for children with complex medical needs.
- Transitioning from hospital to home care presents unique challenges for families managing HETF.
- Understanding these challenges is vital for developing effective support strategies.
Purpose of the Study:
- To identify and analyze the practical problems encountered by families of children on HETF within the first year post-hospital discharge.
- To evaluate issues related to feed and equipment delivery, pump functionality, tube maintenance, and overnight feeding practices.
Main Methods:
- A qualitative study involving 30 parents/carers of children (aged 0-16 years) on HETF.
- Interviews were conducted 12 months after hospital discharge.
- A questionnaire assessed issues including home delivery, pump usage, tube changes, and overnight feeding.
Main Results:
- Significant problems reported include sleep disturbance (75%), frequent tube dislodgement (46%), and tube blockages (41%).
- Challenges with home delivery companies (HDCs) providing specialized pediatric feeds (43%) and pump inaccuracy (23%) were also noted.
- Overnight feeding, pump accuracy, and feed/equipment procurement caused considerable stress for families.
Conclusions:
- Children on long-term HETF and their families experience substantial difficulties, particularly with sleep, tube integrity, and logistics.
- There is an urgent need for dietitians and community nurses to collaborate on solutions for overnight feeding challenges.
- Regular home reviews are essential for ongoing identification and mitigation of problems associated with long-term HETF.
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