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Related Experiment Videos

Surrogates' perceptions about feeding tube placement decisions.

Carmen L Lewis1, Laura C Hanson, Carol Golin

  • 1Division of General Internal Medicine and Clinical Epidemiology, University of North Carolina at Chapel Hill, 5039 Old Clinic Building 229, CB#7110, Chapel Hill, NC 27599-7110, USA. carmen_lewis@med.unc.edu

Patient Education and Counseling
|March 1, 2006
PubMed
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Surrogate decision-makers often felt they made feeding tube decisions alone but preferred physician involvement. Many desired more information than provided, indicating unmet informational needs regarding feeding tube placement.

Area of Science:

  • Medical Decision Making
  • Patient-Physician Communication

Background:

  • Feeding tube placement involves complex decisions for surrogate decision-makers.
  • Understanding surrogate perceptions is crucial for improving end-of-life care communication.

Purpose of the Study:

  • To assess surrogate perceptions of who decided on feeding tube placement and who should have.
  • To evaluate the adequacy of information provided to surrogates for feeding tube decisions.

Main Methods:

  • Structured interviews were conducted with 246 surrogate decision-makers.
  • Data collection focused on decision-making roles and information received.

Main Results:

  • 55% of surrogates felt they primarily made the decision, while 75% preferred shared decision-making with a physician.

Related Experiment Videos

  • While benefits, risks, and life impacts were discussed, 28-41% desired more information.
  • Surrogates reported being asked about understanding and thoughts on placement, but felt information was incomplete.

    • Conclusions:

    • Surrogates desire increased physician participation in feeding tube placement decisions.
    • Current information standards may not fully meet surrogate informational needs for these critical choices.