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Quality of life for children with chronic kidney disease

Stuart L Goldstein1, Arlene C Gerson, Cheri W Goldman

  • 1Department of Pediatrics, Baylor of Medicine and Renal Dialysis Unit, Texas Children's Hospital, Houston, TX 77030, USA. stuartg@bcm.tmc.edu

Seminars in Nephrology
|March 15, 2006
PubMed

Insights

Children with chronic kidney disease (CKD) have improved survival, but optimal care requires addressing psychosocial and developmental needs for successful adulthood. This review examines factors impacting pediatric CKD patients

Area of Science:

  • Pediatric Nephrology
  • Child Health Services Research

Background:

  • Medical advancements have improved survival for pediatric patients with chronic kidney disease (CKD).
  • Optimal care extends beyond medical management to psychosocial and developmental support.
  • Successful transition to adulthood is a critical outcome for pediatric CKD patients.

Purpose of the Study:

  • To review issues impacting pediatric CKD patients' health-related quality of life (HRQOL).
  • To examine the history of HRQOL research in pediatric CKD.
  • To identify instruments for assessing HRQOL in this population.

Main Methods:

  • Literature review of studies on pediatric CKD.
  • Analysis of factors affecting HRQOL in children with kidney disease.
  • Evaluation of HRQOL assessment tools.

Main Results:

  • Pediatric CKD patients face unique challenges impacting their quality of life.
  • Long-term survival has improved, necessitating focus on holistic care.
  • Various instruments exist to measure HRQOL, but their application in pediatric CKD requires careful consideration.

Conclusions:

  • Comprehensive care for pediatric CKD must integrate medical, psychosocial, and developmental aspects.
  • Understanding and addressing HRQOL is crucial for successful patient transition to adulthood.
  • Further research is needed to refine HRQOL assessment and interventions for pediatric CKD.

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