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Related Experiment Videos

Why are structured data different? Relating differences in data representation to the rationale of OpenSDE.

Renske K Los1, Astrid M van Ginneken, Jolt Roukema

  • 1Department of Medical Informatics, Erasmus MC-University Medical Centre, Rotterdam, The Netherlands.

Medical Informatics and the Internet in Medicine
|March 15, 2006
PubMed
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OpenSDE application aids structured patient data recording. Design flexibility in OpenSDE, an application for structured data entry, significantly impacts how clinicians represent patient information, influencing data consistency in clinical practice and research.

Area of Science:

  • Medical Informatics
  • Clinical Data Management
  • Health Services Research

Background:

  • Structured data entry is crucial for clinical practice and research.
  • Existing systems may not fully capture the nuances of narrative patient data.
  • OpenSDE aims to bridge this gap by supporting structured recording of patient information.

Purpose of the Study:

  • To analyze the impact of OpenSDE's design rationale and requirements on data representation.
  • To identify factors contributing to differences in how clinicians represent patient data using OpenSDE.
  • To evaluate the consistency of data representation in a clinical setting.

Main Methods:

  • Three pediatricians transcribed 20 paper patient records into OpenSDE.
  • A comparative analysis was performed on transcribed records to identify differences in data representation.

Related Experiment Videos

  • Differences were categorized based on content and representation (structured vs. free text).

    • Main Results:

    • A total of 1764 findings were transcribed, with 302 showing representational differences among clinicians.
    • Clinician flexibility in determining data detail accounted for 87% of representation differences.
    • Thirteen percent of differences arose from clinicians interpreting and translating source text into OpenSDE concepts.

    Conclusions:

    • The design decisions within OpenSDE significantly influence data representation consistency.
    • Flexibility in data detail is the primary driver of representational variability.
    • Further refinement of OpenSDE's design may be needed to enhance data standardization.