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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
[Ethics in perinatology]
G R Burgio1, A Paganelli, P Sampaolo
1Dipartimento di Scienze Pediatriche, Università degli Studi di Pavia, Pavia. roberto.burgio@unipv.it
Insights
The perinatal phase, crucial for extremely premature infants, involves complex ethical considerations regarding intensive care. Advances in monitoring and care have improved outcomes for these high-risk neonates.
Area of Science:
- Perinatal Medicine
- Neonatology
- Bioethics
Context:
- The perinatal period, from 22-23 weeks gestation to the first weeks of neonatal life, presents unique ethical challenges.
- Extremely low birth weight newborns (<500g) born before 23 weeks gestation face significant survival and quality-of-life risks.
- Intensive care decisions for extremely preterm infants necessitate balancing rational medical judgment with emotional considerations.
Purpose:
- To highlight the ethical complexities surrounding intensive care interventions for extremely preterm neonates.
- To discuss the impact of neonatal immaturity on survival prognosis and quality of life.
- To examine the evolving landscape of healthcare programs and guidelines for high-risk perinatal care.
Summary:
- The perinatal phase is characterized by profound immaturity in extremely low birth weight newborns, impacting survival and quality of life.
- Neonates born before 23 weeks gestation are at extreme risk, prompting critical healthcare program considerations.
- Ethical dilemmas persist regarding the extent of intensive care in Neonatal Intensive Care Units (NICUs), especially when communicating severe diagnoses to parents.
Impact:
- Improved monitoring and care programs for high-risk pregnancies have yielded positive results in recent years.
- Ethical guidelines for perinatal care are evolving and vary across different countries.
- Effective communication strategies are essential when delivering difficult diagnoses to parents of newborns, particularly those born preterm.
Abstract:
The perinatal phase coincides, at its onset (22nd-23rd week of gestation, according to common acknowledgment), with the possible beginning of a extrauterine life susceptible of protraction. The 1st, for some the 4th, week of neonatal life marks the conclusion of the perinatal phase. There are several reasons to burden this period, to which a complex World Health Organization (WHO) document for Europe was dedicated in November 2000, with ethical issues. The profound immaturity that characterizes these extremely low weight newborns, of an approximate weight of 500 g, influences the poor survival prognosis (especially for those born within the 24th week), as well as the limitations concerning quality of life, often severe. Neonates born earlier than the 23rd week are at extreme risk, and rouse critical considerations regarding the choice of a health care program. A close monitoring of pregnancies at risk of premature termination, and a careful program of medical care for these extremely pre-terms, progressively implemented in the last 10-15 years, have given consistent results, reported in surveys of recent publication. From an ethical point of view, the problem of limitations within or beyond which to stretch intensive care interventions in Neonatal Intensive Care Unit (NICU) is still crucial, being the orientation between rational and emotional a difficult issue. Guidelines or behaviour proposals, variable with time and manifold in different countries, are reported. Naturally, the communication of a severe diagnosis to parents of a newborn even if not preterm-born falls also under the ethical issues of the perinatal period.
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