Jove
Visualize
Contact Us
JoVE
x logofacebook logolinkedin logoyoutube logo
ABOUT JoVE
OverviewLeadershipBlogJoVE Help Center
AUTHORS
Publishing ProcessEditorial BoardScope & PoliciesPeer ReviewFAQSubmit
LIBRARIANS
TestimonialsSubscriptionsAccessResourcesLibrary Advisory BoardFAQ
RESEARCH
JoVE JournalMethods CollectionsJoVE Encyclopedia of ExperimentsArchive
EDUCATION
JoVE CoreJoVE BusinessJoVE Science EducationJoVE Lab ManualFaculty Resource CenterFaculty Site
Terms & Conditions of Use
Privacy Policy
Policies

Related Experiment Videos

Ethical issues in haemophilia.

D DiMichele1, A Chuansumrit, A J London

  • 1Department of Pediatrics, Weill Medical College of Cornell University, New York 10021, USA. dmdimich@med.cornell.edu

Haemophilia : the Official Journal of the World Federation of Hemophilia
|May 11, 2006
PubMed
Summary

Haemophilia care faces global access and technology challenges, especially in developing nations. Cost-effective interventions and ethical gene-based diagnostics are crucial for improving patient outcomes and future treatments.

Related Concept Videos

You might also read

Related Articles

Articles linked to this work by shared authors, journal, and citation graph.

Sort by
Same author

Suicidal ideation in patients with skin conditions: A multicentre European study.

Journal of the European Academy of Dermatology and Venereology : JEADV·2026
Same author

Evidence for Trace Gas Metabolism and Widespread Antibiotic Synthesis in an Abiotically Driven, Antarctic Soil Ecosystem.

Environmental microbiology reports·2025
Same author

A cross-sectional study on gender differences in body dysmorphic concerns in patients with skin conditions in relation to sociodemographic, clinical and psychological variables.

Journal of the European Academy of Dermatology and Venereology : JEADV·2024
Same author

Dermatological patients with itch report more stress, stigmatization experience, anxiety and depression compared to patients without itch: Results from a European multi-centre study.

Journal of the European Academy of Dermatology and Venereology : JEADV·2024
Same author

Toxoplasmosis epidemic in a population of urbanised allied rock-wallabies (Petrogale assimilis) on Magnetic Island (Yunbenun), North Queensland.

Australian veterinary journal·2024
Same author

HTS driven by fluorescence lifetime detection of FRET identifies activators and inhibitors of cardiac myosin.

SLAS discovery : advancing life sciences R & D·2023

Area of Science:

  • Medical Ethics
  • Genetics
  • Public Health

Background:

  • Haemophilia care is a global challenge, with limited priority and resources in developing countries.
  • Orphan diseases, including haemophilia, require strategic interventions despite resource constraints.
  • Advancing technologies like gene-based diagnostics present new ethical considerations.

Purpose of the Study:

  • To address ethical issues in global haemophilia care access and technological implementation.
  • To explore cost-effective strategies for establishing national standards of care.
  • To examine the ethical implications of gene-based diagnostics and gene therapy in haemophilia.

Main Methods:

  • Review of current ethical challenges in haemophilia care.
  • Analysis of resource allocation and cost-effective intervention strategies.

Related Experiment Videos

  • Discussion of ethical considerations for gene-based diagnostics and gene therapy implementation.

    • Main Results:

    • Global haemophilia care access is inequitable, necessitating prioritized interventions.
    • Cost-effective resource utilization can enable a national standard of care.
    • Gene-based diagnostics and potential gene therapies raise significant ethical questions for all stakeholders.

    Conclusions:

    • Joint efforts and strategic resource allocation can improve haemophilia care, even in resource-limited settings.
    • Ethical frameworks must guide the implementation of gene-based diagnostics and screening programs.
    • The haemophilia community must engage in discussions regarding the ethical introduction of gene therapy and other innovations.