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Assessment and Evaluation of the High Risk Neonate: The NICU Network Neurobehavioral Scale
Published on: August 25, 2014
Birth characteristics associated with early intervention referral, evaluation for eligibility, and program
Karen M Clements1, Wanda D Barfield, Milton Kotelchuck
1Bureau of Family and Community Health, Massachusetts Department of Public Health, Boston, Massachusetts 02108, USA. karen.clements@state.ma.us
Insights
Early Intervention (EI) services in Massachusetts successfully referred and evaluated most at-risk infants. Birth characteristics like low birthweight significantly predicted EI referral, with most referred infants deemed eligible for services.
Area of Science:
- Pediatric Health
- Public Health Policy
- Developmental Pediatrics
Background:
- The Individual with Disabilities Education Act mandates Early Intervention (EI) services for infants and toddlers with developmental delays.
- Assessing referral, evaluation, and eligibility rates is crucial for understanding service access for at-risk infants.
Purpose of the Study:
- To determine the percentage of high-risk infants referred to Massachusetts EI services within one year of birth.
- To identify specific birth characteristics that predict referral, evaluation, and eligibility for EI services.
Main Methods:
- Utilized the Pregnancy to Early Life Longitudinal (PELL) data system, linking birth certificate, hospital discharge, and EI program data for 219,037 infants born between 1998-2000.
- Employed multivariate logistic regressions to identify independent infant predictors of referral, evaluation, and eligibility.
Main Results:
- 6.8% of infants were referred to EI within one year; referral rates were high (88%) for infants with multiple birth risks.
- Low birthweight (<1500g) strongly predicted referral; triplet birth was the strongest predictor of evaluation.
- 88% of referred infants were evaluated, and 85% were found eligible for services.
Conclusions:
- Early Intervention referral and evaluation rates are high for at-risk infants in Massachusetts.
- Birth characteristics beyond the state's high-risk definition, such as specific birthweights, predict referral.
- Linked population and program data are valuable for evaluating EI service delivery.
Objectives:
The Individual with Disabilities Education Act mandates Early Intervention (EI) services for infants and toddlers with developmental delay. We assessed the percentage of infants at risk for developmental delay due to characteristics present at birth who were referred to Massachusetts EI within 1 year of birth, evaluated for eligibility, and eligible for services. In addition, we identified birth characteristics that independently predicted 0-1 year program referral, evaluation, and eligibility.
Methods:
The Pregnancy to Early Life Longitudinal (PELL) data system linked birth certificate, hospital discharge, and EI program data of 219,037 infants born in Massachusetts, 1998-2000. Multivariate logistic regressions identified independent infant predictors of referral, evaluation, and eligibility.
Results:
Of 219,037 births, 14,852 (6.8%) were referred to EI within 1 year. Birthweight<1200 g (OR=9.7, 95% CI 3.3-12.9) and birthweight 1200-1499 g (OR=7.4, 95% CI 5.8-9.5) strongly predicted referral. Referral was high (88%) among infants with two or more birth risks. Among referrals, 88% were evaluated for eligibility. The strongest predictor of evaluation was triplet birth (OR=4.3, 95% CI 1.6-11.8). Among infants evaluated, 85% were determined to be eligible.
Conclusion:
EI referral and evaluation are high among infants born at risk for delay in Massachusetts. Some characteristics not included in the state's high-risk definition (e.g. birthweight 1200-1499 g) were identified that predicted referral. Most referrals were eligible for services. Results demonstrate the value to states of using linked population and program data for program evaluation.
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