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Related Experiment Videos

Community consultation in emergency research.

Charles Contant1, Laurence B McCullough, Lorna Mangus

  • 1Department of Neurosurgery, Baylor College of Medicine, Houston, TX, USA.

Critical Care Medicine
|June 10, 2006
PubMed
Summary
This summary is machine-generated.

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Community consultation for emergency research is feasible using various methods, but results vary significantly based on the approach and question framing. Understanding community perspectives is crucial for ethical research practices.

Area of Science:

  • Medical Ethics
  • Public Health Research
  • Clinical Trial Design

Background:

  • Federal regulations permit emergency research without prospective consent if additional subject protections, such as community consultation, are implemented.
  • Community engagement is a key component for ethical conduct in emergency research settings.

Purpose of the Study:

  • To assess the feasibility of different community consultation methods for emergency research.
  • To determine how to effectively incorporate community feedback into research protocols.

Main Methods:

  • Three distinct community consultation methods were employed: random-digit dialing surveys (n=456), convenience sampling of hospital patients and visitors (n=566), and public meetings (n=114).
  • A standardized instrument assessed attitudes toward emergency research, including randomization, consent waiver, location, and risks/benefits.

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  • Item framing (positive/negative) was randomized to control for potential biases.

    • Main Results:

    • All consultation methods were feasible, with telephone surveys being the most efficient and demographically representative.
    • Willingness to participate in a low-risk study was 79.75%, with lower approval rates for key study features: risk/benefit (67.78%), randomization (53.7%), consent waiver (57.66%), and location (44.45%).
    • Consultation method, item framing, age, ethnicity, and prior research participation significantly influenced approval rates (p < .01).

    Conclusions:

    • Community consultation is feasible but yields results highly dependent on the chosen method, question framing, and community demographics.
    • Substantial, unexpected opposition to research components can emerge, highlighting the need for refined consultation processes.
    • Further research is required to better define community consultation processes and develop strategies for responding to consultation findings.