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[Quality of life of patients with total cavopulmonary anastomosis]

A Favreau1, A Legendre, E Bergoënd

  • 1Unité de cardiologie pédiatrique, service de pédiatrie A, hôpital d'enfants Gatien de Clocheville, CHU de Tours.

Archives Des Maladies Du Coeur Et Des Vaisseaux
|June 29, 2006
PubMed

Insights

Total cavo-pulmonary connection (TCPC) surgery for congenital univentricular heart disease (CUHD) patients generally results in good health-related quality of life (HRQOL). Factors like comorbidities and time since surgery can impact HRQOL, but resilience helps patients adapt.

Area of Science:

  • Cardiology
  • Pediatric Cardiology
  • Quality of Life Research

Context:

  • Congenital univentricular heart disease (CUHD) requires complex surgical palliation.
  • Total cavo-pulmonary connection (TCPC) is a standard surgical approach for CUHD.
  • Understanding the long-term health-related quality of life (HRQOL) in TCPC survivors is crucial.

Purpose:

  • To evaluate the health-related quality of life (HRQOL) in patients who have undergone total cavo-pulmonary connection (TCPC).
  • To identify factors influencing HRQOL in both pediatric and adult TCPC survivors.

Summary:

  • This transversal study assessed HRQOL in 24 children and 10 adults (ages 5-41) who had TCPC surgery, using PedsQL 4.0 and Duke Health Profile.
  • Children's HRQOL was 68.15, and parents' was 68.71. Adult HRQOL was 74.67.
  • Comorbidities, scholar difficulties, time since surgery (>10 years), young age, lifestyle, complications, and anti-arrhythmia therapy impacted HRQOL, with physical handicap being a major limitation.

Impact:

  • TCPC surgery offers a satisfactory HRQOL for CUHD patients, despite potential challenges.
  • Findings highlight the importance of managing comorbidities and complications to optimize long-term outcomes.
  • Patient resilience and compensatory mechanisms contribute to a positive self-assessment of HRQOL.
Abstract

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